Ted Klumb is a Commercial and Residential Real Estate agent with First Weber and CEO/Founder of TKOR, LLC property management (www.tedklumb.com). He lives and works in Menomonee Falls, is a graduate of UWM, and is married with two children. Ted is also a former member of the Menomonee Falls School Board, a faith development music teacher, and musician who’s enthusiasm far exceeds his talent.
This came to me from some friends and great people
Children’s Tumor FoundationNature Walk to Find the Cure When: 10 am on September 13, 2008 Where: Havenwoods State Forest 6141 N. Hopkins St. Milwaukee $20(Checks payable to the Children’s Tumor Foundation) 10:00 a.m. (On-site registration and shirt pick-up) Or Preregister with Julie Czudec (Mail checks and T-shirt sizes to:Julie CzudecW170N7766 Overlook Ct.Menomonee Falls, WI 53051) Questions: czudec (at) sbcglobal.net
Pledges WelcomeTo my dear family and friends, I am writing to you about something that I need to become very involved with. This is not easy for me for two reasons. First, I have to face the realization that my son, Brett has a genetic disorder called Neurofibromatosis (NF). Second, I am about to ask for your help which is difficult for me, but necessary. Neurofibromatosis is the term for a genetic disorder in which tumors grow on the nerve pathways. NF Type 1, which is what Brett has, affects 1 in every 3000. Each person is affected differently and there is no prognosis. Some of the problems that can occur include: learning disabilities, bone abnormalities, disfigurement to the brain, and spinal tumors.
Brett is a very bright, adorable, sweet eight year-old. He loves to ride his bike, play baseball, hit golf balls, and assemble things like legos, race car and train tracks and play with friends. He does however; suffer with ADHD and loose joints. The ADHD gets in the way of his learning and peer relationships. The loose joints make it difficult for him to hold his pencil and have legible penmanship. It took our family, the school district, and his physicians all of last school year to come up with the correct medications and learning plan for him. Thankfully it appears that we are making great progress. Often times, prepubescence marks a time in which the tumors can start causing problems. Since Brett is not in this age group yet, all we can do is continue to pray that he will be one of the lucky ones.
Little did I know that when I went back into nursing five years ago and chose to work as a spinal cord injury nurse, that I would be caring for NF patients. The wake up call came for me when I took care of “Steve”. Steve is a 32 year-old who suffers with progressive functional decline from NF. He now spends a great deal of time in his power wheelchair. His family is no longer able to care for him and our team just recently helped him to find a group home in which he can receive 24 hour care if needed.
It is time for me to help raise money for the Children’s Tumor Foundation. The local chapter is sponsoring a Nature Walk to Find the Cure (see below). The money raised will go to the foundation to provide support and education for anyone affected with NF. It also helps to raise awareness and provide education not only to the general public but also to the schools and medical community. It also provides funding for research to find a cure.
Please join me and my family.Thank you so much, Julie Czudec p.s. This is more than just a walk. You will be exploring the outdoors with many exciting things to do, like learning about camping, fly fishing and more. Plus scavenger hunt.